Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: multicentre qualitative study

Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: multicentre qualitative study

Source :

• BMJ [ 0959-8138 ] ; 2009.

Descripteurs français

• Wicri :
  • geographic : Ouganda.
  • topic : Collecte de données, Soins palliatifs.

English descriptors

• KwdEn :
  • Additional information, Aids patient, Antiretroviral, Antiretroviral therapy, Assoc nurses aids care, Cancer patient, Cancer patients, Cape town, Care association, Care services, Caregiver, Carers, Carers patients, Central theme, Cicely saunders, Clin oncol, Clinic, Clinical guide, Clinical practice, Clinical staff, Coast hospice, Coding frame, College london, Complex terms, Cooperative oncology group, Data collection, Data page, Demographic data, Disease trajectory, Effective information provision, Effective provision, Essential drugs, Family caregivers, Family members, Findings show, First study, General healthcare staff, Good communication, Good death, Harding, Health services, Healthcare, Healthcare providers, Healthcare services, Healthcare staff, High levels, Hospice, Hospice africa uganda, Household size, Incurable, Individual patients, Information need, Information provision, Information sheets, Inpatient, Inpatient unit, International donors, Interviewer, Kwazulu, Lifetime risk, Local languages, Memory loss, More information, Motor neurone disease, Negative experiences, Neurone disease, Oncology group, Online, Open communication, Other people, Outpatient clinic, Pain symptom, Palliative, Palliative care, Palliative care services, Palliative care team, Participant, Poor communication, Positive patients, Previous aids diagnosis, Primary diagnosis, Primary place, Proactive provision, Progression, Qualitative research, Qualitative study, Quality care, Reliable information, Research nurse, Research table, Service staff, Side effects, Social support, Southern africa, Symptom, Symptom management, Systematic review, Time constraints, Uganda, Unanswered questions, Unmet, Unmet information, Urban township homecare, Urban violence, Wide range.
• Teeft :
  • Additional information, Aids patient, Antiretroviral, Antiretroviral therapy, Assoc nurses aids care, Cancer patient, Cancer patients, Cape town, Care association, Care services, Caregiver, Carers, Carers patients, Central theme, Cicely saunders, Clin oncol, Clinic, Clinical guide, Clinical practice, Clinical staff, Coast hospice, Coding frame, College london, Complex terms, Cooperative oncology group, Data collection, Data page, Demographic data, Disease trajectory, Effective information provision, Effective provision, Essential drugs, Family caregivers, Family members, Findings show, First study, General healthcare staff, Good communication, Good death, Harding, Health services, Healthcare, Healthcare providers, Healthcare services, Healthcare staff, High levels, Hospice, Hospice africa uganda, Household size, Incurable, Individual patients, Information need, Information provision, Information sheets, Inpatient, Inpatient unit, International donors, Interviewer, Kwazulu, Lifetime risk, Local languages, Memory loss, More information, Motor neurone disease, Negative experiences, Neurone disease, Oncology group, Online, Open communication, Other people, Outpatient clinic, Pain symptom, Palliative, Palliative care, Palliative care services, Palliative care team, Participant, Poor communication, Positive patients, Previous aids diagnosis, Primary diagnosis, Primary place, Proactive provision, Progression, Qualitative research, Qualitative study, Quality care, Reliable information, Research nurse, Research table, Service staff, Side effects, Social support, Southern africa, Symptom, Symptom management, Systematic review, Time constraints, Uganda, Unanswered questions, Unmet, Unmet information, Urban township homecare, Urban violence, Wide range.

Abstract

• https://api.istex.fr/document/6312EB25E5F2D9DAC54303A940064633684C1081/fulltext/pdf
• http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3273778

Affiliations:

• Afrique du Sud, Ouganda, Royaume-Uni

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